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Practical Approaches to Complex Care: Building Your Clinical and Teaching Toolkit for Respiratory Care eCourse


Registration Opens: January 11, 2022

Course Begins: January 20, 2022 (self-paced)

Course Closes: February 20, 2022 (no extensions allowed)

Course Cost: $75 AACPDM Members / $100 Non-Members

Course Summary:

The purpose of this course is to illustrate practical approaches to common yet challenging issues in CMC related to respiratory care. In this course interprofessional complex care providers will discuss best evidence and shared experience in the evaluation and management of proactive respiratory care, counseling and shared decision making on invasive interventions, prescribing appropriate respiratory equipment, interprofessional collaboration, and creating action plans. Participants will develop practical skills in these areas and will leave with a toolkit of strategies and resources to empower families, colleagues, and trainees in their own clinical and educational setting.

Presenters: Kilby Mann, MD, Kurtis Sobush, MD, Matthew Sadof, MD, Naomi Lorch PhD, PT, Emily Goodwin, MD, Kathleen Huth, MD, Irene Dietz, MD

Kilby Mann, MD: Kilby Mann, MD is an Assistant Professor in the Department of Physical Medicine and Rehabilitation at the University of Colorado. Dr. Mann focuses her clinical efforts on the care of children with disabilities. She works on the acute inpatient rehabilitation unit, growing the Rehabilitation Consult service for children with new and chronic disabilities, and provides outpatient care collaborating with colleagues from many different disciplines. Dr. Mann currently serves on the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. She is also a member of the American Academy of Pediatrics and the American Academy of Physical Medicine and Rehabilitation. She is board certified in Pediatrics, Physical Medicine and Rehabilitation, and Pediatric Physical Medicine.

Kurtis Sobush, MD: Kurtis T. Sobush, MD is an Associate Professor of Pediatrics in the Division of Pediatric Pulmonary and Sleep Medicine at Saint Louis University School of Medicine. He is a board-certified pediatric pulmonologist with the SLUCare Physician Group practicing at SSM Health Cardinal Glennon Children's Hospital. He serves as the Medical Director of their Complex Medical Care Program. He is a member of the Saint Louis University Institutional Review Board, their Quality and Patient Safety Committee and their Ethics Committee. Dr. Sobush also provides patient care in the St. Louis region as both a pulmonary consultant and Board of Directors member at Ranken Jordan Pediatric Bridge Hospital. He is the Medical Director of the Respiratory Care Program at St. Louis Community College. His clinical interests focus on optimizing the quality of life for patients that have complex respiratory care needs including those with neuromuscular respiratory weakness, tracheostomy dependence and chronic home mechanical ventilator support. Dr. Sobush is in his 3rd year of serving on the Complex Care Committee for the American Academy for Cerebral Palsy and Developmental Medicine.

Matthew Sadof, MD: Matthew Sadof, MD is an Professor in the Department of Pediatrics at the University of Massachusetts Chan School of Medicine - Baystate in Springfield, MA. Dr. Sadof focuses his clinical efforts on the care of children with medical complexity. He works in the General Pediatric Teaching Clinic and provides primary care, virtual home care, and care coordination. He teaches pediatric, med/peds residents and medical student and provides outpatient care collaborating with colleagues from many different disciplines. Dr. Sadof currently serves on the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. He is also a member of the American Academy of Pediatrics and serves on the Executive Committee on Home Care as the Liaison to the Council on Children with Disability. He serves on the Health care Delivery Committee of the Academic Pediatric Association and Co facilitates the Practice of Complex Care affinity group for the Complex Care Disability Special Interest Group. He is board certified in Pediatrics and has been board certified in Adolescent Medicine

Naomi Lorch PhD, PT: Naomi Lorch, PhD, PT is a psychologist and a physical therapist in independent practice in New York. She works in both professions and provides services to children and adults with a variety of disabilities . Her work over many years has included individuals with medical complexity. Dr. Lorch is a past member of the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine and a current member of the Advocacy Committee. She is also a member of the American Physical Therapy Association and the Pediatric Section; the American Psychological Association and the Division of Rehabilitation Psychology; the Neuro-Developmental Treatment Association; and TASH.

Emily Goodwin, MD: Emily Goodwin, MD is a Clinical Assistant Professor at University of Missouri Kansas City School of Medicine and the Kansas University School of Medicine. She serves as a pediatrician at the Beacon Program, a medical home for children with medical complexity and their siblings within the division of General Academic Pediatrics at Children’s Mercy Kansas City. Dr. Goodwin is the past-chair of Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. She is also co-chair of the Complex Care and Disability Special Interest Group at the Academic Pediatric Association and serves on the Council for Children with Disabilities, Section on Home Care, and Section on Telehealth Care at the American Academy of Pediatrics. She is board certified in Pediatrics

Irene Dietz, MD: Irene Dietz, MD, is an Associate Professor of Pediatrics at MetroHealth Medical Center, Case Western Reserve School of Medicine. She serves as the Director of the Division of Comprehensive Care, a now over 50 year old program dedicated to provided primary care and subspecialty supports for all individuals with childhood onset chronic and complex medical needs. She is board certified in Pediatrics, Neurodevelopmental Disabilities, Developmental and Behavioral Pediatrics, and Hospice and Palliative Care. She is an active member of the American Academy of Developmental Medicine and Cerebral Palsy(AACPDM). A past chair of the Complex Care Committee, as well as a member of the American Academy of Pediatrics (AAP)sections of Children with Medical Complexity, the Section on Oral Health, the Society for Developmental and Behavioral Pediatrics, (SDBP), and also a member of the Medical Advisory Council of the Ohio Department of Health Children with Medical Handicaps Program, and a board member of the ARC of Northeast Ohio. Her interests include Children with Cerebral Palsy, Spina Bifida, Down Syndrome, Intellectual Disabilities, Autism, complication of prematurity, and craniofacial disorders.

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    Course Summary:

    REGISTRATION OPEN! for the AACPDM e-Course on "Practical Approaches to Complex Care: Building Your Clinical and Teaching Toolkit for Respiratory Care". The purpose of this course is to illustrate practical approaches to common yet challenging issues in CMC related to respiratory care. In this course interprofessional complex care providers will discuss best evidence and shared experience in the evaluation and management of proactive respiratory care, counseling and shared decision making on invasive interventions, prescribing appropriate respiratory equipment, interprofessional collaboration, and creating action plans. Participants will develop practical skills in these areas and will leave with a toolkit of strategies and resources to empower families, colleagues, and trainees in their own clinical and educational setting.

    Presenter: Kilby Mann, MD, Kurtis Sobush, MD, Matthew Sadof, MD, Naomi Lorch PhD, PT, Emily Goodwin, MD, Kathleen Huth, MD, Irene Dietz, MD

    Kilby Mann, MD: Kilby Mann, MD is an Assistant Professor in the Department of Physical Medicine and Rehabilitation at the University of Colorado. Dr. Mann focuses her clinical efforts on the care of children with disabilities. She works on the acute inpatient rehabilitation unit, growing the Rehabilitation Consult service for children with new and chronic disabilities, and provides outpatient care collaborating with colleagues from many different disciplines. Dr. Mann currently serves on the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. She is also a member of the American Academy of Pediatrics and the American Academy of Physical Medicine and Rehabilitation. She is board certified in Pediatrics, Physical Medicine and Rehabilitation, and Pediatric Physical Medicine.

    Kurtis Sobush, MD: Kurtis T. Sobush, MD is an Associate Professor of Pediatrics in the Division of Pediatric Pulmonary and Sleep Medicine at Saint Louis University School of Medicine. He is a board-certified pediatric pulmonologist with the SLUCare Physician Group practicing at SSM Health Cardinal Glennon Children's Hospital. He serves as the Medical Director of their Complex Medical Care Program. He is a member of the Saint Louis University Institutional Review Board, their Quality and Patient Safety Committee and their Ethics Committee. Dr. Sobush also provides patient care in the St. Louis region as both a pulmonary consultant and Board of Directors member at Ranken Jordan Pediatric Bridge Hospital. He is the Medical Director of the Respiratory Care Program at St. Louis Community College. His clinical interests focus on optimizing the quality of life for patients that have complex respiratory care needs including those with neuromuscular respiratory weakness, tracheostomy dependence and chronic home mechanical ventilator support. Dr. Sobush is in his 3rd year of serving on the Complex Care Committee for the American Academy for Cerebral Palsy and Developmental Medicine.

    Matthew Sadof, MD: Matthew Sadof, MD is an Professor in the Department of Pediatrics at the University of Massachusetts Chan School of Medicine - Baystate in Springfield, MA. Dr. Sadof focuses his clinical efforts on the care of children with medical complexity. He works in the General Pediatric Teaching Clinic and provides primary care, virtual home care, and care coordination. He teaches pediatric, med/peds residents and medical student and provides outpatient care collaborating with colleagues from many different disciplines. Dr. Sadof currently serves on the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. He is also a member of the American Academy of Pediatrics and serves on the Executive Committee on Home Care as the Liaison to the Council on Children with Disability. He serves on the Health care Delivery Committee of the Academic Pediatric Association and Co facilitates the Practice of Complex Care affinity group for the Complex Care Disability Special Interest Group. He is board certified in Pediatrics and has been board certified in Adolescent Medicine

    Naomi Lorch PhD, PT: Naomi Lorch, PhD, PT is a psychologist and a physical therapist in independent practice in New York. She works in both professions and provides services to children and adults with a variety of disabilities . Her work over many years has included individuals with medical complexity. Dr. Lorch is a past member of the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine and a current member of the Advocacy Committee. She is also a member of the American Physical Therapy Association and the Pediatric Section; the American Psychological Association and the Division of Rehabilitation Psychology; the Neuro-Developmental Treatment Association; and TASH.

    Emily Goodwin, MD: Emily Goodwin, MD is a Clinical Assistant Professor at University of Missouri Kansas City School of Medicine and the Kansas University School of Medicine. She serves as a pediatrician at the Beacon Program, a medical home for children with medical complexity and their siblings within the division of General Academic Pediatrics at Children’s Mercy Kansas City. Dr. Goodwin is the past-chair of Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. She is also co-chair of the Complex Care and Disability Special Interest Group at the Academic Pediatric Association and serves on the Council for Children with Disabilities, Section on Home Care, and Section on Telehealth Care at the American Academy of Pediatrics. She is board certified in Pediatrics

    Irene Dietz, MD: Irene Dietz, MD, is an Associate Professor of Pediatrics at MetroHealth Medical Center, Case Western Reserve School of Medicine. She serves as the Director of the Division of Comprehensive Care, a now over 50 year old program dedicated to provided primary care and subspecialty supports for all individuals with childhood onset chronic and complex medical needs. She is board certified in Pediatrics, Neurodevelopmental Disabilities, Developmental and Behavioral Pediatrics, and Hospice and Palliative Care. She is an active member of the American Academy of Developmental Medicine and Cerebral Palsy(AACPDM). A past chair of the Complex Care Committee, as well as a member of the American Academy of Pediatrics (AAP)sections of Children with Medical Complexity, the Section on Oral Health, the Society for Developmental and Behavioral Pediatrics, (SDBP), and also a member of the Medical Advisory Council of the Ohio Department of Health Children with Medical Handicaps Program, and a board member of the ARC of Northeast Ohio. Her interests include Children with Cerebral Palsy, Spina Bifida, Down Syndrome, Intellectual Disabilities, Autism, complication of prematurity, and craniofacial disorders.


    Course Summary:

    REGISTRATION OPEN! for the AACPDM e-Course on "Practical Approaches to Complex Care: Building Your Clinical and Teaching Toolkit for Respiratory Care". The purpose of this course is to illustrate practical approaches to common yet challenging issues in CMC related to respiratory care. In this course interprofessional complex care providers will discuss best evidence and shared experience in the evaluation and management of proactive respiratory care, counseling and shared decision making on invasive interventions, prescribing appropriate respiratory equipment, interprofessional collaboration, and creating action plans. Participants will develop practical skills in these areas and will leave with a toolkit of strategies and resources to empower families, colleagues, and trainees in their own clinical and educational setting.

    Presenter: Kilby Mann, MD, Kurtis Sobush, MD, Matthew Sadof, MD, Naomi Lorch PhD, PT, Emily Goodwin, MD, Kathleen Huth, MD, Irene Dietz, MD

    Kilby Mann, MD: Kilby Mann, MD is an Assistant Professor in the Department of Physical Medicine and Rehabilitation at the University of Colorado. Dr. Mann focuses her clinical efforts on the care of children with disabilities. She works on the acute inpatient rehabilitation unit, growing the Rehabilitation Consult service for children with new and chronic disabilities, and provides outpatient care collaborating with colleagues from many different disciplines. Dr. Mann currently serves on the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. She is also a member of the American Academy of Pediatrics and the American Academy of Physical Medicine and Rehabilitation. She is board certified in Pediatrics, Physical Medicine and Rehabilitation, and Pediatric Physical Medicine.

    Kurtis Sobush, MD: Kurtis T. Sobush, MD is an Associate Professor of Pediatrics in the Division of Pediatric Pulmonary and Sleep Medicine at Saint Louis University School of Medicine. He is a board-certified pediatric pulmonologist with the SLUCare Physician Group practicing at SSM Health Cardinal Glennon Children's Hospital. He serves as the Medical Director of their Complex Medical Care Program. He is a member of the Saint Louis University Institutional Review Board, their Quality and Patient Safety Committee and their Ethics Committee. Dr. Sobush also provides patient care in the St. Louis region as both a pulmonary consultant and Board of Directors member at Ranken Jordan Pediatric Bridge Hospital. He is the Medical Director of the Respiratory Care Program at St. Louis Community College. His clinical interests focus on optimizing the quality of life for patients that have complex respiratory care needs including those with neuromuscular respiratory weakness, tracheostomy dependence and chronic home mechanical ventilator support. Dr. Sobush is in his 3rd year of serving on the Complex Care Committee for the American Academy for Cerebral Palsy and Developmental Medicine.

    Matthew Sadof, MD: Matthew Sadof, MD is an Professor in the Department of Pediatrics at the University of Massachusetts Chan School of Medicine - Baystate in Springfield, MA. Dr. Sadof focuses his clinical efforts on the care of children with medical complexity. He works in the General Pediatric Teaching Clinic and provides primary care, virtual home care, and care coordination. He teaches pediatric, med/peds residents and medical student and provides outpatient care collaborating with colleagues from many different disciplines. Dr. Sadof currently serves on the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. He is also a member of the American Academy of Pediatrics and serves on the Executive Committee on Home Care as the Liaison to the Council on Children with Disability. He serves on the Health care Delivery Committee of the Academic Pediatric Association and Co facilitates the Practice of Complex Care affinity group for the Complex Care Disability Special Interest Group. He is board certified in Pediatrics and has been board certified in Adolescent Medicine

    Naomi Lorch PhD, PT: Naomi Lorch, PhD, PT is a psychologist and a physical therapist in independent practice in New York. She works in both professions and provides services to children and adults with a variety of disabilities . Her work over many years has included individuals with medical complexity. Dr. Lorch is a past member of the Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine and a current member of the Advocacy Committee. She is also a member of the American Physical Therapy Association and the Pediatric Section; the American Psychological Association and the Division of Rehabilitation Psychology; the Neuro-Developmental Treatment Association; and TASH.

    Emily Goodwin, MD: Emily Goodwin, MD is a Clinical Assistant Professor at University of Missouri Kansas City School of Medicine and the Kansas University School of Medicine. She serves as a pediatrician at the Beacon Program, a medical home for children with medical complexity and their siblings within the division of General Academic Pediatrics at Children’s Mercy Kansas City. Dr. Goodwin is the past-chair of Complex Care Committee of the American Academy for Cerebral Palsy and Developmental Medicine. She is also co-chair of the Complex Care and Disability Special Interest Group at the Academic Pediatric Association and serves on the Council for Children with Disabilities, Section on Home Care, and Section on Telehealth Care at the American Academy of Pediatrics. She is board certified in Pediatrics

    Irene Dietz, MD: Irene Dietz, MD, is an Associate Professor of Pediatrics at MetroHealth Medical Center, Case Western Reserve School of Medicine. She serves as the Director of the Division of Comprehensive Care, a now over 50 year old program dedicated to provided primary care and subspecialty supports for all individuals with childhood onset chronic and complex medical needs. She is board certified in Pediatrics, Neurodevelopmental Disabilities, Developmental and Behavioral Pediatrics, and Hospice and Palliative Care. She is an active member of the American Academy of Developmental Medicine and Cerebral Palsy(AACPDM). A past chair of the Complex Care Committee, as well as a member of the American Academy of Pediatrics (AAP)sections of Children with Medical Complexity, the Section on Oral Health, the Society for Developmental and Behavioral Pediatrics, (SDBP), and also a member of the Medical Advisory Council of the Ohio Department of Health Children with Medical Handicaps Program, and a board member of the ARC of Northeast Ohio. Her interests include Children with Cerebral Palsy, Spina Bifida, Down Syndrome, Intellectual Disabilities, Autism, complication of prematurity, and craniofacial disorders.


    The Genetic Muscle Diseases eCourse is a 3-part lecture series that will explore multiple aspects of inherited myopathies in children. Part I will be led by a pediatric neuromuscular specialist and will focus on the clinical symptoms and phenotypes seen in various genetic muscle diseases as well as an introduction to the diagnostic process of these conditions; Part II will be directed by a neuromuscular genetic counselor and will focus on the process of genetic testing and confirmation of genetic muscle diseases; Part III will be co-led by a physical therapist and occupational therapist and will explore the roles of therapists in the ongoing management of patients with various myopathies as well as highlighting important “red flags” seen in undiagnosed patients that should prompt referral for neuromuscular evaluation. This course is open to all but targeted to pediatrics primary care providers, physical therapists, and occupational therapists.


    The Genetic Muscle Diseases eCourse is a 3-part lecture series that will explore multiple aspects of inherited myopathies in children. Part I will be led by a pediatric neuromuscular specialist and will focus on the clinical symptoms and phenotypes seen in various genetic muscle diseases as well as an introduction to the diagnostic process of these conditions; Part II will be directed by a neuromuscular genetic counselor and will focus on the process of genetic testing and confirmation of genetic muscle diseases; Part III will be co-led by a physical therapist and occupational therapist and will explore the roles of therapists in the ongoing management of patients with various myopathies as well as highlighting important “red flags” seen in undiagnosed patients that should prompt referral for neuromuscular evaluation. This course is open to all but targeted to pediatrics primary care providers, physical therapists, and occupational therapists.