Pain and Fatigue Shared Discussion Forum
Case study presented
Thank you Caitlin,Heidi and Debbie
In addition to the non pharmacological interventions we are working hard to gain funding for individuals at GMFCS IV and V for upper and lower limb active/ passive cycle that is accessed from a wheelchair
When there is little room to move in terms of medication, accessing a pool regularly is difficult this seems to be helping. The few people that we have had one funded so far report muscle relaxation, increased range and function, mood and behavioural improvements, improved sleep. Clearly we need to investigate this further but this is a great base to start from Others have had short trials with positive outcomes. One parent stated everybody with a disability should have one after the above outcomes in her adult son with CP
Great course, thank you
Hello, I have set up home programs for my young adults with CP level 4 and 5, using their adapted bikes on a bike trainer (lifts back wheels off ground) and using touring cycling internet videos for encouragement and to prevent boredom. Their parents are aging as well and can no longer keep up with their grown child's pace with their bikes outdoors. Cycling indoors where the climate can be controlled is also helpful with fatigue and for those who do not tolerate heat or cold.